About HS Connect & Our Why

Our Why:  We are a group of 4 HS advocates who are passionate about sharing our stories and helping other HS sufferers navigate this disease physically, mentally and emotionally.  We are working to eradicate the stigma of HS and inform and educate as many people as we can through this website and other ventures.  Our goal is to get this website and education in the hands of all involved with HS, including dermatologists and surgeons, care takers, spouses, kids, partners, parents, family and friends.  We've hidden long enough, it's our time to shine.  

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Our Mission:  To unite those who suffer with Hidradenitis Suppurativa with solutions, support, suggestions, and helpful information for all dealing with this disease. We hope to further HS awareness, the study of HS, inform others of available studies, and share information regarding successful studies; knowledge is power.

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More About Us:  Denise, Brindley, Jodi and Ghazal are advocates who devote their time, energy and efforts to the study, research, and obtaining knowledge of HS. Between the 4 of us we have 30+ years of advocacy experience and 100+ years of living with HS. We created this site to empower others to share your stories, allow your voices to be heard and ensure you’re not living in silence. We are aware, first hand, of the toll this disease takes on one emotionally, physically and mentally and love to encourage others in their journeys based on our experience and knowledge. 

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HS Connect features articles, clinical trials, stories of others and more. This information is gathered, researched and shared by your HS advocates who donate our time to this cause. Most of our time spent and energy is spent on the following:

• Working with researchers

• Working with scientists

• Attending seminars

• Working with other HS organizations

• Working with other advocates

• Gathering years of statistics

• Writing resourceful articles

• Developing the support group

• Most importantly, ALWAYS HELPING WARRIORS!

As you can imagine, all of this extremely time consuming, but well worth the time and energy in order to help our fellow HS patients!

Our goals with hsconnect.org:

• Spread awareness to those who do not know about HS

• Educate EVERYONE, including physicians

• To be a resource for loved ones when people cannot explain HS and its impacts

• Giving warriors a platform to express themselves, tell their stories, share their pictures, talents, and share the most vulnerable parts of themselves they don’t feel safe to share elsewhere

• Giving everyone with HS an opportunity to be a part of this forward momentum

• Helping those with HS who don't have the means for medical supplies in a co-op of sorts

• Future plans with the help of donations include accessing research studies we are not able to currently without paying for access

• Again, most importantly, ALWAYS HELPING WARRIORS!

As one of our main goals is to spread awareness and educate physicians, hsconnect.org has purchased business cards for physicians to give to their patients as a resource. 

Our goals are lofty, our aspirations are great, our reach will be far and wide and we hope that you join us on this journey.  You are not alone.

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Please join our FaceBook group HERE

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See who we have had the honor to work with and help recruit for HS, commercials, documentaries, medical articles, etc. HERE

*HSConnect is not a 501c3, therefore, we are not able to issue a tax deduction receipt*