WELCOME HEALTH CARE PROFESSIONALS!
EVERYTHING HS, ALL IN ONE PLACE!
ARE YOU A SURGEON OR DERM WHO TREATS HS?
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NEW TO HS & WANT TO LEARN MORE?
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WHAT IS HS?
Hidradenitis Suppurativa (HS) is a debilitating, chronic, complex inflammatory illness, also referred to as an immune-mediated inflammatory illness and follicular occlusion. It has a huge impact on quality of life physically, mentally, and emotionally. HS consists of extremely painful recurring abscesses that may start as pustules (small, pus-filled bumps/sores) that can develop anywhere hair follicles are found (there does not necessarily have to be hair growth). It is possible to experience abscesses or lesions anywhere on our body with the exception of the palms of hands, soles of feet, and the red part on lips.
There are three Hurley stages used to determine severity.
There is no cure for HS and treatment options are limited, however, there are several off label treatments.
HS has never been identified or classified as an autoimmune illness; meaning, to date, there is no strong evidence of or long-standing robust research supporting HS as an autoimmune illness. The past several years of research suggests HS as a possible autoinflammatory illness with innate immune involvement, however, more research is needed to determine a definitive category.
HS is primarily a follicular occlusion, as opposed to a sweat gland disease, however, glands may be involved depending on the individual's situation and severity, i.e., tunneling.
HS may come with other symptoms such as fatigue, low grade fever, and overall malaise, especially during a flare.
HS is NONE of the following:
HS does not discriminate against race, gender, age, sexual orientation, geographic location or blood type.
HS is not rare.
It is common to have other follicular skin conditions, immune mediated inflammatory illnesses and inflammatory illnesses with HS. It is also common to have autoimmune illness(es) in conjunction with HS.
STUDIES| SURVEYS|CLINICAL TRIALS
We're available to consult with you prior to submitting for IRB approval!
HS Connect has decades of experience helping ensure the right questions are asked to make Hidradenitis Suppurativa studies and surveys capture responses that will be helpful and further the study advancements of HS. We'd also be happy to help you create questions or review those you already have prepared and offer insight and feedback.
We will work with you to meet the numbers needed for a robust result. We check in for updates on status and refresh our efforts accordingly to try and obtain the sought after numbers. See some of the reviews from those we've assisted to date below!
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WHAT DOES HS CONNECT HAVE TO OFFER HCPs | PATIENTS | PARENTS
TAKE A LOOK AT THESE FLYERS TO FIND OUT!
"Excellent to work with and really helped me reach my goal!"
- Melissa Butts
"Denise Panter-Fixsen was critical to the success of this research. She was generous in the time she spent and offering guidance for the best outcome."
— Dorothy Sullivan, PhD (c), MSN, APRN-BC
Endicott College Van Loan School of Professional Studies
"That recruitment post is phenomenal! That is honestly far better than I ever could do."
"Incredibly easy to work with. Increased our enrollment significantly."
- Benjamin H Kaffenberger, MD